Minutes_8.21.10

**HD Convention - ** June 25th - 27th, 2010 - 25th Annual Convention - **Hilton North Raleigh - ** **Raleigh, NC ** [|**http://www.hdsa.org/national-convention/convention.html**]
 * HD Support Group Meeting Minutes **
 * 8.21.10 **
 * Bayside Hospital **

** · **Marie and several others attended the HD Convention.  · **At the convention, Marie, with the other folks from the Virginia group, was awarded ** **the ** Virginia Advocacy Delegation Award. She may hold onto the award until after the pool tournament.  //Winning the Virginia Advocacy Delegation award at the Huntington's Disease Convention! We need more support for HR-678,the HD Parity Act of 2009. Ask me how. //

<span style="color: #333333; font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">//Close up of Marie with the// //<span style="color: #333333; font-family: 'Tahoma','sans-serif'; font-size: 12pt; line-height: 115%;">Virginia Advocacy Delegation award. //  **<span style="color: #333333; font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Pool Tournament - Monday, Oct 18, 2010 – Shorebreak, Virginia Beach ** · **<span style="color: #333333; font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Date/Location: **<span style="color: #333333; font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">The 2nd Annual pool tournament is scheduled for October 18 at <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Shorebreak in Virginia Beach. · **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marketing: **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;"> Marie is working on flyers and posters to help market the event. She will have a few flyers to pass out, and would appreciate if everyone could make their own copies to help with the expense. She plans on hanging flyers at the businesses on Shore Drive, get info into the newspaper and on the radio. · **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Raffle: **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;"> She is also requesting that we all gather 2 donations a piece for a raffle. Not sure how much to sell the raffle tickets for. Maybe $1.00/ticket. Marie is hoping Ruth will donate one of her pictures The last time her picture was auctioned off, it went for $100. · **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Entry Fee: **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;"> The Entry fee will be $15.00. Last year, 15 people entered. Marie is hoping to double the entries to 30. · **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Extra Entertainment: **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;"> She also has a connection with a 2-3 piece band who may be willing to play. · **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">T-Shirts Sales: **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">The t-shirts were $19.99 last year. This year she is proposing to sell them for $10.00/shirt. All of the profit will go to UVA for research. T  **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Virginia Pilot Article ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">The Virginia Pilot Article is still in the works. This is an article about HD and Laurie. The gentleman writing the article would still like to get some picks of Laurie in the community. He was invited to come to the meeting today, but he did not show. **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Extreme Makeover ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marie mentioned that they have a contractor, but have not picked a family yet.

**<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Geico ** **<span style="font-family: 'Tahoma','sans-serif';">Volunteer of the year award ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marie is traveling to DC on Sept 16-19 to receive her Volunteer Award from GEICO. She is not sure at this time what the award is. **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Upcoming Events/Meetings ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">There will be a meeting for those involved in the pool tournament. · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">After October, there will not be any support group meetings until January. It will be harder to get folks together with the holidays coming up. **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Website http://www.hdvb.org ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marie is trying to encourage everyone to go to the website for information. I mentioned there is a way to get statics to see if folks are visiting the site. · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marie is now able to post messages in the Discussion area so make sure you take a peek there. [] **<span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Kenny’s Farwell ** · <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;">Marie brought a cake, and bought a very thoughtful gift for Kenny, an address book. The book was passed around so that Kenny could take everyone’s contact info with him. If you need Kenny’s new address, please be in touch with Marie at hdvb@live.com. We will miss you Kenny!!! <span style="font-family: 'Arial','sans-serif'; font-size: 12pt; line-height: 115%;"> // Farewell Party for Kenneth, 8.21.10. Kenneth has been with us since 2008. //